Cancer took a lot out of me and I have never had the disease. Don’t misunderstand. I’d really prefer to be the one to joust with the big C than to have Himself faced daily with, first, being mortal, and second, losing his virility. Losing his job, too, just cut the man off at the knees. Universe, heal him, please? At least knock off the add ins.
Whining is something I loathe. I understand it thoroughly, practice it intermittently, and wallow in it occassionally. The past week or so has been an occassion. The stars have aligned themselves to promote my self examination–again. Again–I am coming up inadquate.
I want my husband back. None of my cajoloing, wheedling, begging, or gentle concern gets as much response as an all out shit-fit. There may be a reason manipulation starts with M-A-N. Shit-fit it is. Bring it on. So I have been in that confrontational funk that follows telling the truth as I see it for the twenty-tenth time with no longer any real hope or expectation that anything will change or change for long. Are you listening, Einstein? I don’t expect different results. I am not insane. THIS get attention. Like a recalcitrant child’s naughty behavior, it may not yield the attention I want but it does get attention. Sometimes any result beats none at all.
Although I am talking to myself here, I need to recount what is in my world. What is includes a man I love to the core of my being. When he cries I taste the salt. I bleed from his wounds. That sounds much more romantic than healthy but, for us, it has worked the better part of thirty years. He is a quiet man. Some say he is a silent man. In the past four years I ‘d have to agree he has lived somewhere in his own pain and has let few people in (optomistic estimate). I think he is in emotional solitary confinement. But before that, his eyes would shine when I entered the room. I could feel his smile wrapping around me from fifty yards away. People would look at him and then to the door to confirm the thought–she’s here. That kind of obvious devotion is a heavy drug. A girl grows used to it. A girl grows used to the man she loves setting the room aglow with a smile just for her. A girl grows confident knowing that there is only one person this man wants to get naked with. This girl grew to depend on that drug.
Prostate cancer is a no-fun disease. Early in our research into his options for treatment, a doctor (A DOCTOR!) said that if you have to get cancer this is the one you want. It grows slowly and there are several ways to get rid of it: surgery, raditation, radiation and surgery, surgery and radiation. Anyway he described it involved cutting or glowing in the dark.
The immediate effects of a radical prostatectomy are no fun. For three weeks, you pee through aquarium tubing running from your bladder, through your penis, into an industrial ziplock bag strapped to your leg. There is nothing to tell you when the bag gets too full. A couple of Guinness will fill ‘er right up. Yup, the bag can get too full.
When the nurse finally cuts the tube and pulls out the catheter, your urine has formed crystals around the the bulb. The cut tube lets the air out of the bulb but the crystals don’t deflate. With a mighty yank, Nursey hauls the shards up your erethra. Although you have dreamed of peeing on your own for three solid weeks, all of a sudden it doesn’t seem like such a good idea. You are not sure you will ever want to pee again.
Then the fun really begins; you’re gonna pee whether you want to or not. The sphincter that controls the urine flow from the bladder was removed with your prostate. Now you have to retrain another sphincter to hold back your urine. Your sphincter may resist retraining wholeheartedly. That means diapers, boys and girls: Grown-up, show-under-your-clothes, how-many-do-I-need, where-do-I-put-them, bought in bulk, Depends.
The incision runs from your navel to your pubis and if several spots don’t heal just right, four years later your gut looks like you have three belly buttons lined up in a column pointing at a penis that has shrunk to the flaccid size of your most hideous teen-aged nightmares. And it never gets hard on its own again.
And those are just the results you can see.
The other result is that you are alive. You have no cancer–today. Your PSA is nearly zero. Every three months for a year you break into a cold sweat waiting to find out that your PSA is still barely detectable. Then you get to revisit the PSA gremlins every six months for two years—then every year. After five years the urologist will say you are cancer free. But in your head, you will never be cancer free again. Its marks are on your body, on your heart, and on your relationships. Cancer leaves deep scars.
So thats the diatribe. The facts for me seem to be that I am also a reminder that the pecker doesn’t peck. Mr. Happy ain’t so very happy. The man I love defines himself more by his erection than I would have ever believed. His doesn’t so he isn’t and because he is frustrated, sad, disappointed, impotent, he forgets to touch me. He forgets that I am the one thing in the world that spreads his grin halfway across the county.
If for one moment I believed that he did not love me, I would know exactly what to do. I KNOW otherwise. Not just because he says so; he shows me in a hundred ways even though I’d rather be touched. Because I know and believe he loves me and I love him absolutely, I haven’t a flipping clue how to help. I have told him. I have shown him. I have mothered him. I have vamped him. I have let him alone. Now, I am yelling at him, threatening him, crying, and whining. I have also made an appointment with my shrink.
It is clear to me that I cannot heal my husband, inside or out. Himself has to find a way to be alive since it seems he is going to live. I mean to find a way to live with him and I would prefer not to have a shit-fit every six weeks.